Comments on: the true history of chronic fatigue syndrome

By: elise

elise — Sat, 17 Nov 2012 20:26:38 +0000

I have suffered from illness for over 10 years. It all started around menopause at age 47.
I had severe vertigo, dizziness, anxiety and weakness. I was diagnosed with Meniere’s disease by a neuro-otologist. Of course they tried to put me on meds but i just can’t tolerate the side effects. So i went the natural route. I tried all the diets from raw food to cooked vegan, I did feel better and some issues cleared up but still had issues with sleep, anxiety, dizziness, vision problems but just tried to ignore it all and worked long hours in a stressful job. Then last year I began to cough and it did not go away. I also started having night sweats which I though was menopause resurfacing. I then got very sick and could not get out of bed. The cough was bad and my chest felt constricted. The fatigue was horrible and I was losing weight, I was thin and did not need to lose any weight. I went to a GP and after blood tests it was discovered I had valley fever and bronchitis. Valley fever is a fungal disease that attacks the lungs and can infect the blood. I live in the destert where this disease is endemic. so they wanted to put me on diflucan which I refused because of the side effects. I did take z pack and it helped the bronchial infection. B ut for the VF i did natural treatments like UV blood irridiation, herbs, etc. I was tested again and valley fever test was now normal.. the titers were down. BUT I still did not feel completely well and the chronic fatigue set in big time. I subsequently got laid off and over the past year I have been largely unproductive with lingering cough at times, fatigue and feeling unwell on some days.
I found out about your book through kevin Giani webinar. I bought the book Diet Wise and it rang true to me. I plan to start the elimination diet as soon as I recover from the recent dental surgery I just had to remove an old root canal tooth that was infected. I have to be on antibiotics for ten days and diflucan for six days but as soon as this time is over I will start the diet…. I was wondering. CAN you HAVE BEANS on the elimination diet? I really don’t like to eat meat every day and beans have protein. there is no mention of beans at all so am not sure. things like lentils, chick peas, pinto, black. Please let me know..
thank you and thank you for your wonderful work and your great book!

By: ProfKeith

ProfKeith — Sun, 25 Mar 2012 00:59:00 +0000

In reply to Maria Gay. You don't hate me, I hope, Maria! There are some good doctors.

By: Maria Gay

Maria Gay — Sat, 24 Mar 2012 05:27:38 +0000

I think that I have had Chronic Fatigue Syndrome since June 1974 when I was 49 years old. I am now 77 years old. It has never been diagnosed because I was so badly treated by doctors and I am not believed by any doctor I have ever visited. It changed my life and I am still angry about losing my energy and unable to study since I think that it caused cognitive failure at times of very bad fatigue. I even married my husband (now deceased) because I was in real trouble and did not know if I could work again. He promised to look after me which he did not. Sent me straight to work and I never had the chance to recover. It also made me very sensitive to medical drugs as well as some amino acids in supplement form, not in food. I eat a very natural diet, lots of fruit and fresh vegetables, a little lean meat, sprouts from seeds, no milk, but use some natural yoghurt, green tea, chia seeds in my oatmeal and yoghurt. However, I still do not sleep well, suffer some anxiety as well as panic attacks and I hate doctors!!!!!!!!!!!!!!

By: ProfKeith

ProfKeith — Thu, 15 Sep 2011 17:14:42 +0000

In reply to Debbie McLarnan.

Debbie,
I answered your query at length about Pick’s disease and wrote you I had posted the answer as a separate blog.
I can’t go in giving “consultations” via a blog. It’s not fair to ask 🙂
Keith

By: Debbie McLarnan

Debbie McLarnan — Thu, 15 Sep 2011 14:53:26 +0000

In reply to ProfKeith.

Professor Keith,
I wrote to you earlier today about my husband being diagnosed with Pick’s Disease and purchased a 2-year subscription. I have personally been diagnosed Fibromyalgia, which complicates my ability to help my husband.

Do you have any suggestions for what vitamins or other things I can do to better manage my pain?

Thank you,

Debbie McLarnan

By: ProfKeith

ProfKeith — Wed, 09 Mar 2011 21:17:05 +0000

In reply to Andrew Booth. Nice one Andrew, Thanks, Prof

By: Andrew Booth

Andrew Booth — Wed, 09 Mar 2011 13:45:11 +0000

I have been a “sufferer” of Fybromyalgia for a few years. Luckily I have one of those rare GPs who encourage complimentary medicine and don’t rely on the Gospel of Textbook diagnosis. For years I was told that “men don’t get fybromyalgia – There’s no such thing as ……- You’re imagining it” until I saw the GP I now insist on seeing on every visit.
Since diagnosis I have changed my diet, medication and lifestyle. All to great effect. I have never suffered from ‘stress’, I have always been very laid back and calm. I was brought up in a family that doesn’t believe in stress!
My advice to anyone who is unsure, find a good GP who will listen to you, take you seriously and treat you as a person instead of a statistic. Also, I would suggest checking the Fybromyalgia Associations website for some excellent information and guidance.